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I do recall that it has been shown that postpartum can be possible trigger Dr. Eric: I think they are different manifestations of the same underlying autoimmune process. The labs have been uncooperative in my area to do a correct testing since they changed their procedures. Eric: Rochelle, have you ever had Hepatitis C or B? My mother has Multiple Myeloma so I am being watched for it and I see a hematologist/oncologist. I see my heart doctor every 6 months Ed Moderator: You said an extreme cold can cause a stroke..happens because..how the vessels are reacting? The feedback I get is so amazing that there is such a need for scared people out there Ed Moderator: What type of work did you do in medical field?

I have been unable to get another positive Cryo test since. I use an allergist but we don't have an immunologist in our area. Finding a common thread Rochelle: You are right Ed, all my diseases came on in a flash, I know they have to be related. Rochelle: Cryo can affect the heart due to the thickened blood pumping through it. If the blood thickens enough it can thicken enough to damage the heart. We have not outreached to the medical field yet so I believe we will quadruple that in the next year. I mean, there is a diff between discomfort that may accompany vasc, but cryo is a whole different thing? we could learn a lot form the overlaps, IMHO Rochelle: Yes, recommend your group that has any cold sensitivity to get Cryo lab done. If it is positive, it could save them a lot of organ damage down the road.

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DATE: March 24, 2011 Participants: Ed Becker: PAN Support Director / Moderator Rochelle Ray: Director of Cryoglobulimia Vasculitis Organization Bernie: PAN Group Member Peter: PAN Group Member Dr. Start off with some backstory and tell us about yourself, where you live, family.

Last modified 26-Oct-2018 14:57